Featuring a Mini-Encyclopaedia for helping children with Special Needs
Organised by the "UDAAN for the Disabled" Project of Foundation for Spastic and Mentally Handicapped Persons (FSMHP)
C-27 Dayanand Colony, Lajpatnagar - 4; New Delhi 110024; INDIA
Tel: +91-11-41621137; Email: DirectorDirections: For specific answers, try the Drop Down menus on lower down left. This section is for the serious user. Click here for a simpler version.
Occupational Therapist: 2 SI Experience an advantage
Apply with CV to firstname.lastname@example.org with cc to email@example.com
UDAAN pioneered Hyperbaric Oxygen Therapy for children in India in 2001. The results of our long term follow up, world's largest scale, platform indepenenent study, to compare the efficacy of various hyperbric pressures and 21% Oxygen Vs. 100% oxygen in children with cerebral palsy has been published in March 2014 in the world's most prestigious Hyperbaric Medicine Journal, UHM of USA.
Click here for both Editorial on our paper, and the full text of our Paper.
CLINICAL RESEARCH ON CUTTING EDGE STATEGIES TO IMPROVE BRAIN FUNCTION IN CP AND AUTISM,
Highly subsidised 3 day workshop on Rapid Prompt Method of Communication skill development, internationally acclaimed method of restoring communication skills in children with Autism. It will be conducted by Ms. Jackie Dorshorst, an experienced Therapist from USA, with over 2 decades of experience. It is scheduled from 23rd to 25th April, 8 AM to 5 PM, at the Auditorium of Hamdard University in South Delhi.
This three day workshop is a joint collaborative effort by AKHIL AUTISM FOUNDATION OF USA and UDAAN for the Disabled at Delhi.. It will be conducted as a hands on therapy for eight children, one child at a time, for about half hour daily, for 3 days in a row. The selected eight children will participate with their parents. The whole procedure will be video-recorded and simultaneously telecast to the main auditorium for observation and learning by 200 parents and therapists. Children of observers should be left at home, except for the eight pre-selected ones who will receive the direct hands on training by Ms. Jackie and her team.
The participation fee for the observer group of parents or therapists will be only Rs.3000/-, and shall include 3 days of mid-day snacks, lunch, evening tea and course materials.
FREE Repetitive Transcranial Magnetic Stimulation (rTMS) Therapy plus Computer assisted Neurofeedback Therapy for CP and the brain injured child, for the first 50 children meeting our Inclusion and Exclusion Criteria. Children from South Delhi or those who can visit UDAAN daily for onre month followed by a gap of 2 months for 3 cycles, are preferred.
The Project has started. Parents willing to avail this useful, safe, non-invasive FREE Therapy for their Spastic CP child should immediately write to firstname.lastname@example.org cc to email@example.com. The child will be required to attend for 1 month, then a 2 month gap, repeat therapy for 1 month and a gap of 2 months, and then one more round of 1 month therapy per child.
Free purified and standardised Bramhi (Bacopa) based Unani formulation in Autism, for brain repair and recovery, in 50 children children with Autism Spectrum, aged 3 years to teen-age meeting the Inclusion and Exclusion creieria, for a six month each.
Free Injection MB12 study in Autism, with free drug supply for two years (complete course), to 100 selected children as per inclusion and exclusion criteria. This is a Drugs
Controller of India and IEC aproved project, and strict compliance to protocol would be mandatory throughout the 2 years of therapy (full course) to avail of the full free medical treatment.
Recruitment to start soon. Watch this place.
Subsidized Pre-Vocational Therapy for children with Autism
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UDAAN MULTIMODE THERAPY
NEURODEVELOPMENTAL AND OTHER DISORDERS MANAGED
Traumatic brain injury
Autism Spectrum Disorders
Genetic NDD, e.g. Rett Syndrome
Motor Neuron Disease
Assessment and Diagnosis
Guidance and Counseling
Art and Craft Training
Activities of Daily Living
FUTURE STUDIES TO HELP SPECIAL NEEDS BEYOND SIMPLE REHAB
REPETITIVE TRANSCRANIAL MAGNETIC STIMULATION (rTMS) with NEUROFEEDBACK (FREE and already started)
rTMS with Neuro-Biofeedback consists of cutting edge medical devices to stimulate paralysed body parts, dysfunctional brain areas, and restore brain control, increase concentration, reduce hyperactivity and thus demonstrate an all round improvement in brain function. With the installation of the full range of equipment at UDAAN, it is the first NGO to conduct a proper study of the benefits of rTMS in brain damaged children (CP and Traumatic Brain Injury).
This unique project for helping recovery of brain function in CP children has been initiated by UDAAN, as a Project of the Govt. of India, in collaboration with NEHU. Fifty children meeting the selection criterias (inclusion and exclusion criteria) will be treated by it free of cost at UDAAN. The project is now ongoing and participants welcome to avail of this FREE service.
MB12 INJECTION (FREE)
Vitamin Methyl B12 is a methylated form of the more popular vitamin B12. The vitamin B12 molecule is like a truck that ferries needed chemicals (methyl or hydroxy or acyl, etc) from liver to the tissue asking for it. On reaching the target tissue, it gives up the chemical, and reverts back to ordinary B12 to do similar transporter work once again.
Brain needs "Methyl". The liver, with the help of folic acid, attaches a Methyl molecule to B12 to convert it to Methyl B12. On reaching blood circulation, the MB12 donates the Methyl to Homocysteine to convert it to Methionine, which has the ability to penetrate the blood brain barrier to deliver the "Methyl" radical to the DNA of brain cells and nerves, for carrying out their individual functions, while the MB12 reverts back to ordinary B12. On giving up the Methyl radical inside the brain, Methionine reverts back to Homocysteine, which, with the help of Selenium and the pyridoxal pathway, gets converted to Glutathione, the cleaning agent to get rid of toxins and heavy metals. MB12 also methylates and activates the Dopamine D4 receptors to make them responsive to dopamine to control brain hyperactivity. MB12 is already approved for use in India.
This Clinical Study will establish the safe and effective role played by MB12 in releiving some symptoms of Autism, when it is administered as a concentrated solution such that the injection size will be equal to only half of a drop of water, given painlessly by an Insulin Syringe just below skin of hip. This study has been approved by Drugs Controller of India and Independent Ethics Committee. One hundred children meeting the inclusion and exclusion criteria will receive the drug FREE at UDAAN for two years. The children must continue their standard rehab at the center of their choice. The project is scheduled to start by mid 2015.
BIOMEDICAL THERAPY (SUBSIDIZED)
Many types of Special Needs children suffer from genetic defects that may directly affect the child, or predispose the child to increased susceptibility to environmental infections, toxins, pollution.
allergies, immune dysfunctions, mitochondrial dysfunctions, etc. Many of the resultant biomedical defects may be isolated / discovered, and treated with modern medical approaches to mitigate their harmful physiological influences and thus enhance quality of life of the child.
UDAAN has taken the lead in bringing scientific evidence based biomedical therapies for autism to India. The first venture was to organise an exhaustive 3 day International Conference at Delhi called NR2CON conference in 2007, with 7 International authorities and 22 National authorities discussing every aspect of management of special need children.
The Director of UDAAN, Dr. Mukherjee had to travel to USA repeatedly to attend all six modules, give the CME accredited exams, carry out Mentorship under a Faculty of Medical Academy of Pediatric Special-needs (MAPS) of USA, to be qualified for doing Biomedical Management of Autism.
Today, Dr. Mukherjee became the first Fellow of MAPS in India and remainsthe only Faculty Member of MAPS from Asia. Biomedical Regimen based approach to Autism Management includes:
Biomedical comprehensive testing
Individualized Dietary guidelines
Individualized Micronutrient guidelines
Management of Gut Dysbiosys
Improving Immune Dysregulation
Enhancing DNA / RNA Signalling
HBOT / HBAT in Autism
Managing Mitochondrial Dysfunction
Controlling injurious (self and others) and/or foolish behavior
Stem Cell Research (using specific cells by specific protocol)
UNANI or AYURVEDIC THERAPY (FREE)
Unani / Ayuvedic Herbal Therapies are many millenia old and established by many centuties of experience. The one herb that has consistently stood out for brain repair is "Brahmi" (Bacopa). The problem was in purifying and standardising the active portion from what is available in herbal stores AFTER the hair oil manufacturers have removed a major part of the active moiety.
This has been achieved by the Dept. of Ayush, Ministry of Heaslth, Govt. of India. A specially formulated Brahmi based herbal therapy has been made by the Dept. and will be tried out at UDAAN under strict scrutiny. About 50 children with autism, meeting the Inclusion and Exclusion criteria, as with any therapy, will be treated free of cost. The solitasry Center chosen for doing this project is UDAAN, bcause of its long history and international recognization for doing unbiased clinical research based therapies.
We propose to start by the beginning of the new Financial Year (2015 - 2016).
HYPERBARIC OXYGEN THERAPY (HBOT) (SUBSIDIZED)
UDAAN pioneered Pediatric HBOT in India (Since 2001). In our ongoing research we showed that the main effect of HBOT seems to come from DNA signalling rather than the brute force of high tissue oxygenation, though the latter, too, has an important role to play, since 1.3 ATA compressed air Hyperbarics gave the statistically same benefit as 1.75 ATA 100% Oxygen. We are now able to design personalized therapy, by regulating the pressure of each session (1.1 to 2.0 ATA), oxygen concentration (20% or 100%), treatment intervals and the number of sessions required to be given, based on clinial features, correlation of clinical features to the severity of damage on CT-SPECT Fusion Scan of brain, and complicarions if any.
Clinical Trial proven benefits of HBOT
Reduces tissue inflammatory edema
Promotes new blood vessel formation in the injured area
Enhances release of stem cells from bone marrow to enhance healing