Sponsorships / Donations
to be arranged for various therapies and check-ups at FSMHP-UDAAN for the
Disabled, as on 6th February 2016
Information regarding registration for Multimode
Early Medical Intervention Therapy of small children with Cerebral Palsy /
Autism Spectrum / Down Syndrome
UDAAN / INDIRA only agrees to make the MMT
available WITH LEAST INCONVENIENCE TO THE PARENT, EITHER AT UDAAN OR
INDIRA OR AT ASSOCIATED INSTITUTIONS.
We will work with parents and guardians to
try to arrange sponsorships / donations / substantial concession /
sponsorship, etc. as part of our Charitable Trust principles, as per
economic standards of the parents, especially for Indian citizens resident
We will also assist in various logistical
problems as far as we can.
The parent or
legal guardian must choose to avail of the same by voluntary informed
HBOT / mHBAT for 60 to 80 days, one or two
sessions per working day, depending on severity of hypoxic/inflammatory
damage seen on SPECT Hybrid Scan.
Repetitive Transcranial Magnetic
Stimulation (rTMS) to restore function in areas of bran contributing to
loss of motor control, as well as some non-significant increase in
Cognitive ability (a project under DBT, Govt, of
Computer-assisted Neurofeedback to enhance
concentration of mind and reduce attention deficit. (a
project under DBT, Govt, of India).
Standardized purified Brahmi supplement to
enhance Cognitive skills (a project under CCRUM, Min. of Health, Govt, of India).
Additional hyperbaric therapy of 40
sessions after 4th month if indicated.
Intensive Standard Therapy for 8 months,
daily except Sunday, second and last Saturday and Statutory Govt. notified
Holidays. These additional Therapies include:
a)Physiotherapy to mobilize joints and
b)Occupational Therapy to train
correct mobility at joints
c)Gait training to facilitate proper
use of legs to walk better
d)ADL training to teach activities of
daily life, e.g., toilet training, feeding, dressing. undressing, etc.
e)Speech Therapy for not only proper
communication development but also exercises of larynx to palate to facilitate
mouth activities like soft palate control, sucking, swallowing, saliva drooling
control, phonation, etc.
f)Special Education to teach capacity
limited education, behavior control, daily living skills, socialization, group
g)Sensory Integration Therapy in fully
equipped Department, to reduce sensory issues.
h)Arts and Crafts training to
inculcate attention, eye-hand coordination, and to give expression and an
outlet for their imagination.
limb surgery whenever required for unmanageable contracture / deformity.
selected cases go in for Regenerative therapy.
EXPENSES TO BE ARRANGED AS SPONSORSHIPS / DONATIONS UNDER SECTION 80-G OF THE
IT ACT, for Children with special needs requiring therapy
For individual costs, speak to
the Center-in-Charge on +19-11-41621137 during
office hours of 10 am to 5 pm.
Assessment of CP Child
Mental, Speech & Language level assessment, SPECT Hybrid Scan of brain
Assessment of ASD child
including SI, Mental/Cognitive, Behavioural/Psychological, Speech &
Language level assessment, Biomedical Testing as per need. SPECT Scan is done
only when there is a suspicion of intra-uterine severe infection / trauma /
labour / neonatal injury to the child’s brain.
per therapies availed of, depending on need of a particular child, and
duration of sessions required
& language Therapy
Hybrid 3-D Scan of Brain
We strongly recommend a follow up 2nd SPECT Scan at 8th month
as of now
nearby on long term
Single unfurnished room with attached bath in nearby middle
class area at a cost depending on standard of room, facilities, distance from
UDAAN, type of locality. It could range from Rs.10000 or so per month, to
higher end flats @ Rs.20,000 or more per month ..
Medical checkups for HBOT fitness: -
Pediatric checkup (Charges as
applicable payable directly to the doctor’s clinic).
ENT checkup (Charges as applicable
payable directly at the doctor’s clinic).
MODE OF PAYMENT:
In one lump sum, or, if in installments,
then by the 7th of the month.
Payable by Cash, Crossed Local Cheque, Credit/Debit card swipe, Demand Draft Favoring
“FSMHP” payable at New Delhi
Medical Assessment and fitness clearance
is necessary for HBOT by ENT Specialist and Physician/ Pediatrician, to be
done just before starting HBOT, or again if HBOT is halted for safety
reasons due to inter-current illness during the HBOT regimen.
Serial Videography may be done
(free of cost to parent) when MMT regimen is started
Children paying on a month-to-month basis
only, must make payment before 7th of the month
Hyperbaric Therapy for CP
therapy is possible as two modes, whose choice for a particular child depends
on the recommendation of the medical expert panel based on clinical features
& SPECT Imaging and parental choice based on economic and logistic reasons:
1.5 ATA pressure for 90 minutes, using
100% Oxygen for 60 minutes, one session every working day for 40 sessions,
except Sundays, coded as HBOT. Cost as available at Fortis
Hospital is Rs.1,95,000 for 40 sessions, where
customized pressure facility with 100% Oxygen is available, to give
tailor-made therapy as per severity of lesion(s) being treated.
1.3 ATA pressure for 90 minutes using
ambient air throughout, one session a day every working for 40 sessions,
except Sundays, 2nd & last Saturday, and compulsory Govt. holidays, coded
as mHBAT. The cost of 40 sessions of HBAT is Rs.60,000
at present, with significant reduction as further therapy is done at a
stretch. As per Lead Article and Editorial in UHM Journal March
2014, the efficacy of mHBAT and HBOT at 1.5 to 1.75 ATA are similar. The
latter is what is available at most places giving HBOT. As per Wassman at al (2004), the
efficacy of HBOT in brain lesions follows a bell-shaped curve, with peak
at 1.5 ATA and decreasing benefit after that except in few severe tissue
destruction cases and the like.
Cost of HBOT 1.5 ATA with 100% Oxygen is
subject to decision of the tertiary care hospital where children are
referred to. At present, the cost is about Rs.1,95,000 for 40
In Autism: Even though a few authorities
suggest 1.5 ATA 100% Oxygenation, we are concerned about Oxygen Free
Radical damage in brain in these children who are already deficient in
their Free Radical Defense mechanisms. Laboratory facilities to assess
Free Radical onslaught or Glutathione levels are not easily available in India.
A recent Double Blind Placebo Controlled Randomized study by Rossignol et
al has shown that simple compressed air mHBAT at 1.3 ATA achieves a
significant improvement in brain function of children with Autism. Parents
are free to opt for either therapy mode.
Medical Therapy is too gray an area to discuss in a website. However, we have
included some information on it in another part of our website. Click here to access it.
Statements, Precautions, Warnings and
Many modes of therapy are
known and practiced in different parts of the world, with variable safety and
efficacy. HBOT, mHBAT and Stem cell Therapy are still classified under Experimental Therapies. What UDAAN is
trying to achieve is to bring all these modes of therapy under one roof in the
best interests of a CP child, for the benefit of those parents who wish to
avail of them under their own risk after giving us informed written voluntary
We give no guaranty of success or cure or improvement.
All children volunteered
for the therapy should preferably be aged between 1st and preferably
10th birthday. We can do other ages but prefer not to. This is
because Leukodystrophy is claimed to start developing
in the Ischemic area of brain by the 5th year in most cases, and continues to
progress. There is no way to predict how much a child could improve, though we
believe that the results will be best before 5 years age. Hence, if HBOT is
given after age of 5 years, benefit may not be up to expectations. As per
limited data available, until the age of about 7 to 10 years, the other modes
of experimental therapy may be able to be of some benefit at least.
We prefer children of such
parents who are educated, with good knowledge of English, to understand each
mode of therapy on offer, and both parents (preferably) are willing to give
written informed voluntary consent for each mode of therapy for which the child
may be considered suitable.
The parent MUST UNDERSTAND that the new therapies are generally considered safe when
used by persons trained in its use. UDAAN is fortunate to have a trained group
of specialists in various institutions of Delhi
who have agreed to support this venture. UDAAN only agrees to facilitate
availability of these therapies to parents who desire to avail of the same for
their child. We do not guarantee any cure or remarkable degree of improvement though
we believe that the results we hope to achieve should equal or surpass any
achieved so far in India, and should be on par with the best achieved anywhere
in the world.
is recommended regular follow up 2 to 3 times a year for 2 to 3 days, until
For further details
contact at FSMHP-UDAAN project, C-27, Dayanand Colony, Lajpatnagar – 4, New
Delhi - 110024.
Contact person at UDAAN: Center-in-Charge, FSMHP-UDAAN for the Disabled, on phone:
+91-11-41621137, or write to Dr. Arun Mukherjee, Technical Director, FSMHP-UDAAN for the