Mitochondrial
Disease: Current scenario of management of MD
Ms.Shannon Kenitz
Executive Director of the International Hyperbarics
Association
Note:
Ms. Kenitz has a lovely
looking daughter, who was diagnosed by many of the foremost Institutions in
USA as a fatal form of Mitochondrial disease, for whom nothing could be done.
After moving from one specialist to another, she came to Dr. R A Neubauer,
better known as the father of HBOT for medical use. He said, “We will try”
That child is now alive, the
first and longest surviving child with severe Mitochondrial disease, who is
improving by the day. She is now about 6 years old, getting ready to join
school soon, contrary to all medical opinion she had received earlier.
Shannon’s passionate drive
to find a way out of a hopeless situation has paved the way for many more
children with Mitochondrial Disease in US, who are surviving and improving by
the day, thanks to her. This is a mother’s first hand experience story.
Abstract:
Mitochondrial Disease: Current scenario of management of MD
Including personal experience with her own daughter affected
with MD
The outcome 5 years later