Organizations helping special need children and adults in Delhi, in alphabetical order of main work area.
We invite organizations working in the field of Neurodevelopmental Disability to share
reciprocal link with UDAAN from their own website from a page as popular and prominent as this page. We expect the UDAAN link below on the link-sharing
Cerebral Palsy, Autism, Medical Intervention Therapy
UDAAN FOR THE DISABLED;
C/27-28 Dayanand Colony, Lajpatnagar - 4, New Delhi 110024,
Phone: +91-11-41621137, HQ Phone: +91-11-26446978;
Focus Area: Autism, Cerebral Palsy, DMD, Down Syndrome, Multiple Handicap, Spinal Muscle Atrophy, etc.
Facilities: Spl.Ed., OT, PT, SIT, Speech, ADL Training, Multi-Sensory Therapy, Arts and Crafts, Psychologist Services Dietary counselling, etc, Regenerative Medical Therapy, both mild and regular HBOT, DAN Protocol and MAPS Recommendation based Testing, Diet guidelines and Biomedical Treatments, Micronutrients regulation, MB12 Injection therapy, etc.
Director: Dr. Arun Mukherjee, Cell +91-981-115-7839, or
Center-in-Charge: : +91-11-41621137; or
Projects and R&D Manager ; +91-958-242-8429
Weaker section of society, women and children
JB-35B Janta Flat, Hari Nagar, New Delhi-110064; Phone: 2549 9229; Focus Area: weaker section of society
- AASHRAY ADHIKAR ABHIYAN
E-270 Greater Kailash Part II, New Delhi 110048; Phone: 26418885-7; E-mail: email@example.com; Focus Area: Children, women, elderly, disabled and destitute
- Orthopedica WORLD VISION INDIA
B-3 Lajpat Nagar-II,New Delhi-1 1024 Phone: 26831168; Focus Area: Overall community development
- CONCERNED ACTION NOW (CAN)
B-IV, 3067 Aruna Asaf Ali Road, Vasant Kunj,, New Delhi-110070; Phone: 26132815, 26122705 Fax: 26104865; Website: www.indev.nic.in/can.
- ADP-NORTH DELHI [A PROJECT OF WORLD VISION INDIA]
A-4244, Manushree Building, Commercial Complex; Dr.Mukherji Nagar, New Delhi; Phone: 27651924; E-mail: ADP-NORTH DELHI; Focus Area: Orthopedically handicapped.
- ADP-SOUTH DELHI (A PROJECT OF WORLD VISION)
I - 38 First Floor, Lajpat Nagar-Il, New Delhi-110024; Phone:26928695; Focus : Orthopaedically handicapped, over all, community development.
- AKSHAYA PRATISHTHAN
Sector D Pocket III Vasant Kunj, New Delhi-110070; Phone: 26132565, 26124923; Fax: 26896143; Focus Area: Orthopaedically disabled; Locomotor disabled.
- ASRA [ACTION FOR SELF RELIANCE AND ALTERNATIVE)
WZ-14A, Jeet Shopping Market Budhela, Vikas Puri, New Delhi-110018; Phone: 25526844; Focus Area: Orthopaedically handicapped.
- ASSOCIATION OF THE NATIONAL BROTHERHOOD FOR SOCIAL WELFARE
21-22, New Rohtak Road, Karol Bagh, New Delhi-1 10005; Phone: 23628641 Fax: 23520405; ocus Area: Orthopaedically handicapped
- BHAGWAN MAHAVEER VIKAS SAHAYATA SAMITI
L-43, Connaught Circus, New Delhi-110001; Phone: 23323350, 25785133; Focus Area: Physically handicapped.
- DELHI BHARAT VIKAS FOUNDATION
113A Pocket B, Dilshad Garden, New Delhi 110095; Phone: 22296387, 22120559; Focus Area: Physically handicapped.
- DELHI CHESHIRE HOME
Delhi Cheshire House, Opp. Holy Family Hospital, Okhla Road, New Delhi-25; Phone: 26311069; 26917560 Focus Area: Orthopedically Handicapped; Adult Mentally retarded
- BROTHERHOOD SOCIETY
Brotherhood House, 7, Court Lane, New Delhi-1 10054; Phone: 23931432, 24626309; Fax: 23981025; Email: mono @ del2.vsnl.net.in; Focus area Orthopaedically disabled.
- DEPARTMENT OF PSYCHIATRY
Dr.Ram Manohar Lohia Hospital, Park Street, New Delhi-110001; Phone: 2336 5525/363; Focus Area: Mentally ill, Orthopedically handicapped.
NDMC, Kautilya Marg, Chanakyapuri, New Delhi 110021; Phone: 23014165; Focus Area: Hearing impaired.
- PERFECT SCHOOL
R2- 26P/9 Indira Park, Palam Colony, New Delhi-110045; Phone: 25415647, 25036586; Focus Area: Orthopaedically handicapped.
- PARMATH MISSlON HOSPITAL
23/7, Shakti Nagar, New Delhi-110007; Phone: 27244300, 27246595 Fax: 27213798; Focus Area: Orthopaedically handicapped.
- TRAINING CUM PRODUCTION CENTER
20, North Avenue, Punjabi Bagh, New Delhi-110026; Phone: 25412871; Focus Area: Orthopaedically handicapped.
Hearing Impaired/ Speech Impaired
- ABHILASHA SPECIAL EDUCATION CENTER
E-24B MIG Flat (DDA), G-8 Area, Mayapuri, New Delhi-110027; Phone: 25143123; Focus Area: Hearing impaired.
- ALI YAVAR JUNG NATIONAL INSTITUTE FOR THE HEARING HANDICAPPED
Northern Regional Centre, Kasturba Niketan Complex, Lajpat Nagar II, New Delhi-110024; Phone: 26835093; Focus Area: Hearing Impaired; Speech impaired.
- ALL INDIA DEAF AND DUMB SOCIETY
Plot no.487, Institutional Area, Karkari More, Near Preet Vihar, Vikas Marg, New Delhi-110092 Phone: 22156670, 22414224; Focus Area: Hearing impaired.
- ALL INDIA FEDERATION OF THE DEAF
18, Northend Complex, RK Ashram Marg, New Delhi-1 10001; Phone: 2336 4766; Focus Area: Hearing impaired.
- ALL INDIA FEDERATION OF THE DEAF, TRAINING CENTER
12-13, Institutional area, Shaheed Jit Singh Marg, New Delhi-110016; Phone: 26563984, 26966683; Focus Area: Hearing impaired.
- ALL INDIA SPORTS COUNCIL OF THE DEAF
8, Northend Complex, RK Ashram Marg, New Delhi-110401; Phone: 2336462.4; Focus Area: Hearing impaired; Speech problem.
- ASHA AWWA SCHOOL FOR HANDICAPPED CHILDREN
Base Hospital; Delhi Cantonment, New Delhi; Phone: 25691997; Focus Area: Hearing impaired (age group 5-14 years).
- AWAAZ (branch office) (refer below)
Block Ol , plot no 71 A, Budh Vihar, New Delhi-110015 ; Phone: 2727 6295
- AWAAZ SPECIAL SCHOOL
K-87, Kirti Nagar, New Delhi-110015; Phone: 25451301, 27276295; Focus Area: Hearing impaired
- DEAF AND DUMB CO-OPERATIVE INDUSTRIAL SOCIETY LTD.
Plot No 7, Weavers Colony, Bharat Nagar, New Delhi-110052; Phone: 27233320; Focus Area: Hearing impaired.
- DELHI ASSOCIATION OF THE DEAF
92, Kamla Market, New Delhi-110002; Phone: 23233991, 23235065, 23236521 Fax: 23230l47; Focus Area: Hearing impaired
- DELHI FOUNDATION OF DEAF WOMEN
DDA Community Hall, Gali Chandiwali Paharganj, New Delhi-110055; Phone: 23533276; Focus Area: Hearing impaired women in age group 16 years and above
- DELHI FOUNDATION OF DEAF WOMEN
DDA Community Centre 1 st floor, Chandiwali Gali, Paharganj, New Delhi; Phone: 23533276; Focus Area: Hearing impaired (women of 1 8 and above).
- DELHI SPORTS COUNCIL FOR THE DEAF
J-l0 Saket, New Delhi-110017; Phone: 26527303; Focus Area: Hearing impaired.
- GOVERNMENT LADY NOYCE SECONDARY SCHOOL FOR THE DEAF
Kotla Feroz Shah, New Delhi-110002; Phone: 23319419; Focus Area: Hearing impaired.
- MULTIPURPOSE TRAINING CENTER FOR THE DEAF
AIFD, 12-13 Institutional Area, Shahid Jeet Singh Marg, New Delhi-110067; Phone: 26563984; Focus Area: Hearing impaired.
- NURSERY PRIMARY SCHOOL FOR THE DEAF
Kingsway Camp, Seva Kutir Complex, New Delhi-110009; Phone: 27465731; Focus Area: Hearing impaired.
- NAVKIRAN SCHOOL
91 , Kiran Vihar, Near K D Hospital, New Delhi-110092; Phone: 22226732; Focus Area: Speech disorder.
- PRAMILA BAI CHAUHAN MOOK BADHIR VIDYALAY
487, Institutional Area, Karkari More, New Delhi-110032; Phone: 22206670, 22156670; Focus Area: Hearing impaired.
- REHABILITATION UNIT IN AUDIOLOGY|
Department of ENT, AIIMS, New Delhi-110029; Phone: 26561123; Focus Area: Mentally ill; Speech and language problems; Voice disorder.
- SAHARA MANOVIKASH KENDRA: A PROJECT OF JANSEVA EDUCATION SOCIETY
RP Block, Pitam Pura, New Delhi-110034; Phone: 27224075; Focus Area: Orthopedically handicapped; Speech disorder; Hearing impaired.
139, Asiad Village, New Delhi-110049; Focus Area: Hearing impaired; Speech problems.
- SOCIETY FOR REHABILITATION & RESEARCH OF THE HANDICAPPED
Swami Shivananda Bhawan, Amar Colony, Llajpat Nagar IV, New Delhi-110024; Phone: 26420697; Focus Area: Hearing impaired.
60 Feet Road Corner, 1 /4992 Loni Road, Shahdara, New Delhi-110032; Phone: 22111817 Fax: 22291817; Focus Area: Hearing impaired children.
- ALL INDIA CONFEDERATION OF THE BLIND
Braille Bhawan, Near Rajiv Gandhi Cancer Hospital, Sector 5, Rohini, New Delhi-110085; Phone: 27054082, 27247469 ; Fax: 27050915; E-mail: firstname.lastname@example.org; Focus Area: Visually impaired.
- ANDH MAHA VIDYALAYA
Panch Kuin Road, New Delhi-110001; Phone: 23364209; Focus Area: Visually impaired
- BHARAT BLIND SCHOOL
510 A Circular Road, Shohdra, New Delhi-110032; Phone: 22423021; Focus Area: Visually impaired.
- BHARAT BLIND TECHNICAL WELFARE SOCIET
Central Market, Madangir, New Delhi-1 10067; Phone: 26983520; Focus Area: Visualiy impaired.
- BHARTIYA BLIND EDUCATIONAL CULTURAL WELFARE
SOCIETY 61 / 1-B-1 1 , Telewara, Shahdara, New Delhi-1 10032; Phone: 2222 8016, 2216 7375; Focus Area: Visually impaired.
- BLIND RELIEF ASSOCIATION
Lal Bahadur Shastri Marg, Near Hotel Oberoi, New Delhi-1 10003; Phone: 24361376; Fax: 24364730; E-mail: email@example.com; Focus Area: Visually impaired.
- GOVERNMENT SECONDARY SCHOOL FOR BLIND BOYS
Kingsway Camp, New Delhi-110009; Phone: 23535575, 23555044; Focus Area: Visually impaired.
- INSTITUTION FOR THE BLIND
Amar Colony, Lajpat Nagar IV, New Delhi-110024; Phone: 26411915, 26216506, Focus Area: Visually impaired boys.
- INSTITUTION FOR THE BIIND [ANDH VIDYALAYA)
Panchkuin Road, New Delhi-110001; Phone: 23364265; Focus Area: Visually impaired boys.
- JANTA ADARSH ANDH VIDYALAYA
Siri Fort Road, Behind bungalow No.4, Sadiq Nagar, New Delhi-110049; Phone: 26250701, 26250702; Focus Area: Visually impaired.
- NATIONAL BLIND YOUTH ASSOCIATION
C,G.H.S, Complex, Fazalpur Mandawali, near Patparganj Depot, New Delhi-110092; Phone: 22460502; Focus Area: Visually impaired.
- NATIONAL FEDERATION OF THE BLIND
2721, Chowk Sangtrashan, Pahar Ganj, New Delhi-110055; Phone: 23550277, 23971901 Fax:556789; Focus Area: Visually impaired
- RASHTRIYA VIRJANAND ANDH KANYA VIDYALAYA SOCIETY
M-19 Lajpat Nagar, New Delhi - 110024; Phone: 26310465; Focus Area: Visually impaired girls.
- RASHTRIYA VIRJANAND ANDH KANYA VIDYALAY SOCIETY
New Rajinder Nagar, Shankar Road, New Delhi-110060; Phone: 25781370, 25746002; Focus Area: Visually impaired girls.
- THE NATIONAL ASSOCIATION FOR THE BLIND
Sector V, R.K. Puram, New Delhi-110022; Phone: 26175886, 26176379 Fax: 26187650; e-mail: firstname.lastname@example.org; Focus Area: Visually impaired.
WISHLIST FOR THE FUTURE OF UDAAN
Time and tide wait for no man, and the old must give way to the new. Over the last 22 years, the children and the various courses have taught me so much and I don't want it to go waste.
There are Medical Doctors who have led a full life or women doctors who gave up on medical practice in the interests of their family responsibilities. Some of them are sitting idle at home now, wondering how to spend their time.
If some one like that wishes to dedicate his/her time to a life that is meaningful, medically satisfying social work, and also happen to live close by to Lajpatnagar - 4, New Delhi, aged not more than 60 years, why not drop by at UDAAN to talk to me over a cup of coffee and see where that takes us?
Dr. A Mukherjee, MD.
ONLINE SKYPE DISCUSSION NOW AVAILABLE
Parents, especially those not from Delhi or India, desirous of consultation with Dr. Arun Mukherjee to avail of modern Biomedical management guidance (as trained at Medical Academy of Pediatric Special-needs, USA, and other Regenerative Therapy opportunities, may email our Manager Projects and R&D with details for guidance on setting up the meeting at a mutually convenient date and time.
WELCOME TO A BRIEF OVERVIEW OF OUR RESEARCH EFFORTS TO ENHANCE QUALITY OF LIFE IN CHILDREN WITH CP OR AUTISM.
Every one has many brain functions. We normal persons, depending on our fancy or compulsion, develop one or more of these functional abilities to the limit to make a livelihood out of it, like a guitar player
or a cricketer or a singer or a dancer, and so on.
Special need children also have some functions remaining behind, which the Therapists work on to develop them to their fullest extent to try and compensate for lost functions to the degree possible.
However, after that has been achieved to an anticipated extent, a time comes when further progress stops as the child has already developed the remnant functions to the maximum limit possible.
This is where Regenerative Medicine comes in. Regenerative Medicine is an attempt to restore a variable amount of damaged but not dead brain (anoxic penumbra). That is like adding an external USB
Hard Disk to a computer whose irreplaceable internal hard disk has lost a part of its storage capacity due to bad sectors. However, these methods work best below 5 years of age, and preferably below
teen age as far as possible.
The researches we tried, to offer additional early medical help, to the Special Need Children
N.B. Contact personally with child at the UDAAN center for evaluation and additional details and guidance in case you wish to avail of these therapies or need further counselling.
Botulinum Toxin and Phenol Nerve Block:
Great while it lasts: usually 4 to 6 months. Reduces spasticity ONLY, that too, ONLY in the injected limb muscle. Does not help CP types like Floppy or Athetoid or Ataxic limbs. Does not improve behaviour,
memory, cognitive function, hearing, sight, speech, and so on AND SO ON to any statistically significant degree. The relief from spasticity is mostly short lived because the nerve regenerates spontaneously within 4 to 6 months and
also because just about every parent tires of the mandatory EVERY DAY continuous 2 hours or so of OT/PT till age of 21 in boys and 18 in girls, in order to maintain the limb straight without re-contractures.
Conclusion: Helps differentiate dynamic from fixed contractures and plan subsequent surgery if needed. If parent is very diligant about Physical Therapy, long term muscle control possible, which unfortunately is uncommon.
Possibly quite effective if done properly. Difficult to get a genuine practitioner. Little Indian evidence of large scale long term efficacy studies.
Conclusion: We are not doing it as of now.
Computer Assisted Biofeedback
It was introduced to India by Prof B Brucker of Miami University. We did get very good results in the few cases we did some years back, but then that center closed down due to
Conclusion: Would like to give it a second try if and when it becomes available locally.
Same experience as with Acupuncture.
Conclusion: Same as with Acupuncture
This was a project allotted to Hamdard University of Delhi by serial Brain SPECT Scan based follow up for 6 months. It did show a benefit, but the degree of benefit did not appear to be cost effective for the obtaing the degree of purity and standardization we demanded to get a dependable drug sample with same potency in every batch.
Conclusion: Parents interested may contact qualified Ayurvedic / Unani Physicians with long experience in neurological disorders, with access to preparations prepared under stringent quality control and standardized by modern techniques to ensure that there is no batch to batch variance in potency. Dont be mislead when someone claims that such and such drug has 10 mg of Bramhi per tablet as it is a meaningless statement, since the yield and therapeutic potency of the active ingredient varies from tree to tree, farm to farm, season to season, time of collection and method of preparation.
Pulsed Magnetic Field Therapy:
Produces a fair degree of spasticity relief during the therapy period, but it reverses soon enough when the regime is over. No long term cognitive change or benefit, even in the spastic muscles.
Conclusion: We are not doing it as of now.
Hyperbaric Oxygen Therapy (HBOT)
Early medical intervention therapy with HBOT has now stood the test of time with over 20 years of International Experience in hundreds of children and 10 years of UDAAN (Indian)
experience in more than 300 children, of whom about 150 have been followed up long term (More than 6 months. See 7 set video on youtube.com using search terms "arun mukherjee mhbot".
We used SPECT and Clinical assessment to decide which type of HBOT to prescribe to which child.
Our chamber-independent study on 1.75 ATA 100% Oxygen vs 1.5 ATA 100% Oxygen vs 1.3 ATA ambient air Vs Control non-HBOT group showed that all three HBOT groups were
statistically highly (p<0.001) better than control group at 4 to 6 months but with no statistically significant differences between the three HBOT groups. This study won Dr. Mukherjee the award
of "Hyperbaric Doctor of the Year" 2010 at the 7th International Symposium on HBOT and the Future of Healing, held at Irvine, CA, USA in July 2010.
Conclusion: Hence our experimental "Chamber-Independent" therapy is still ongoing even after 10 years of successful experience.
Regenerative Medical Therapy:
This form of regenerative medicine may be one of the ways to the future. The body has tremendous power of self healing. To use that, every tissue of the body has resident stem cells to regenerate and repair tissues.
Sometimes, when the injurious agent is too powerful, the resident stem cells are either killed or damaged to a state of dormancy. In such cases, infusion of fresh viable stem cells into the hypoxic area can rekindle activity in the resident stem cells and make them get reactivated to rapidly repair damaged tissues provided that they are damaged and dormant but not dead: not a small thing in itself. Stem cells may be of different types. The Government authorities recognize
only a few types as permissible as Experimental Therapy.
SPECT Scan of Brain before and 2 months after Regenerative Medical Therapy.
Color Code: Blue is badly hypoxic area, deep red is mild to moderate hypoxic area and pink to white is normally perfused area. Note the significant reduction in extent of blue and deep red areas in the second scan showing the extent of damaged brain revived for the Rehab Therapists to train for augmenting functional abilities further and improving overall quality of life.
Fresh Registration Ongoing
FACILITIES AT UDAAN
- Fresh beneficiaries seeking one-to-one Rehabilitation therapy. For eligibility, contact at UDAAN with the child and all case records. Age below 10 years.
- Beneficiaries proposed to participate in the Experimental Research Projects of UDAAN may contact at UDAAN to see if they come up to the criteria for inclusion and exclusion as per protocol, etc.
For eligibility, contact Dr. Arun Mukherjee at UDAAN with the child and all case records.
- Recognized Rehabilitation Institutions that wish to join UDAAN as Rehabilitation Partners in the ongoing Injection MB12 Project in Autism may contact at UDAAN. If their Rehab center comes up
to the standards as laid down by us in our Protocol and Proforma of the Project submitted to Drugs Controller General of India, then their beneficiaries / students may avail of MB12 project at UDAAN.
Contact at UDAAN for details.
Assurance of the Therapy center is essential that they will be able to carry out directed Standard Therapy and Follow up, with once in 2 month assessment (at UDAAN) for 2 years, as it is an important requirement of the DCGI sub,mitted Protocol. A very strict observance on the tolerance of the therapy has to be maintained as per our scientific protocol.
This data needs to be sent to regulatory authorities at scheduled intervals, therefor guarantee to provide two years of two-monthly follow up data as per Proforma is essential for Therapy partners.
- Medical Consultation for special need children at time of enrolment or later as per need of the child
- Detailed clinical assessment by Rehabilitation Therapy Specialists, using mathematical prognostic scales to assess serial progress over time with therapy program initiated.
- One to one target oriented (based on Prognostic Scale evaluation of functional ability at various levels) therapy program at fixed times daily, to provide each child need based therapies.
- Occupational Therapy and Sensory Integration Therapy at our fully equipped facility
- Special Education incl. ABA techniques, TEEACH and Structured instruction methods
- Speech, Language and Communication Therapy
- Hand function training
- ADL training
- Gait training
- Group activities
- Arts and Crafts training
- Music Therapy
- Arrangement for prosthetic devices
- Arrangements for orthopaedic surgical procedures
- Home therapy guidelines
- Help with various medical referrals
- Psychologist's counselling
- Biochemical Assessment
- DAN Protocol based Dietary guidelines, Micronutrient supplements, MB12, oral chelation (in future)
- SPECT Scan of Brain at rebate
Physical Therapy sessions
Sensory Integration Therapy and Special education sessions
The Award of HBOT Doctor of the Year 2010 and receiving it from Mrs. Neubauer, wife of late Dr. Richard Neubauer, Father of Clinical HBOT in the world.
Medical and Surgical Specialist panel (Arranged by Appointment)
- Assistance for Specialised testings for SPECT, MTHFR Polymorphism, genetic testing, etc
- Psychological Testing and Counselling
- Hyperbaric Oxygen Therapy (First Indian NGO Therapy center with a decade old hands on experience on HBOT with own chamber)
- Regenerative Medical therapy
- Corrective surgery in intractable contractures in spastic Cerebral Palsy
- Cochlear implant
- DAN & MAPS Protocol based Biochemical Investigation and Therapy for Autism
- Injectable MB12 Therapy
- GFCF Hypo-allergenic balanced diet
- ENT problems
- Eye problems
- Dental problems
- Gynae problems
- Genetic Assessment
- General medical problems
Our Consultant Panel:
- Internal Medicine
- General Surgeon
- ENT Specialist
- Pediatric Neurologist
- Eye Specialist
International Advisory Board
- Dr. Dan Rossignol, USA
Sr. Consultant in DAN Protocol & HBOT for Autism &
Chairman, Medical Academy for Pediatric Special Needs
- Dr. James Neubrander, USA
Sr. Consultant in DAN Protocol & HBOT for Autism &
Leading Researcher in MB12 usage in Autism
- Dr. Paul Harch (HBOT), USA
Clinical Associate Professor of Medicine &
Director of the Albert J. Lauro Hyperbaric Medicine Department of Medicine, LSU School of Medicine.
- Dr. Philip James (HBOT), UK,
Sr. Consultant in use of HBOT for various indications
- Dr. Pierre Marois (Paediatric HBOT), Canada
Main Medical Researcher of the McGill Study in CP published in Lancet 2001